Jody went for a general fertility workup in January, as we began to grapple with the thought that I may not be able to have a baby, and she may have to step in as our "pinch hitter". To her surprise, the doctor noted a cyst on Jody's left ovary that they said had probably been there for a while and could just be watched. A little tingle of worry and intuition prompted us to request a follow-up scan be scheduled for a few weeks later.
The day after our embryo transfer, Jody went to the hospital alone for a more precise ultrasound test. Jody thought the technician behaved strangely throughout the process, taking too much time, taking too many screen captures, consulting with the radiologist...and then sending Jody for an unscheduled 3D ultrasound. She was scared but trying not to panic me, given my potentially delicate condition, and I was scared and trying not to panic Jody by reacting to this news. I was at work, and felt paralyzed with fear. Not just worry, but "oh-my-God-is-this-the-end-of-life-as-we-know-it" fear. I just found her, we can't be tested like this already. When I told my mom and a couple of close friends what had just happened, their voices and faces reflected what I was feeling inside. Disbelief, and panic.
Jody's cell phone photo of her indecipherable scans |
Jody's father died of cancer at the age of 56, when Jody was just 21 years old. Two years later, her brother also died of cancer, at age 32. We had good reason to be scared.
We were told it would take two weeks to get the results of the new scans, and had an appointment with Dr. Liu scheduled for Monday. But we recently received a call, asking us to come in on the Friday instead. Were they kindly saving us an extra two days of worry, and fitting us in to report the "all clear"? Or were they calling us in as soon as possible because the news was bad? It was the longest, most agonizing, two weeks of our lives.
As we got ready for bed on Thursday night, Jody half-joked to me, "Maybe tomorrow is the day we find out you're pregnant, and I have cancer."
I awoke in a fog on Friday morning, needing to go to the bathroom, and remembered just in time to pee on a stick. Just one more time. I waited, and waited, watching the blinking window.
Pregnant
1-2 weeks
was the message. I ran to the bedroom, and realized it was only 2:30 in the morning, and not actually time to start the day at all. I turned on the light anyway and woke my wife. Bleary-eyed with sleep, she grinned and said, "I didn't give up."
A few hours later, Jody left for work, and I was at the hospital for my beta blood test. Once it was done, I snuck into the pharmacy to purchase yet another, different type of HPT. I headed over to the fertility clinic, early for the joint doctor's appointment where Jody would join me, and went straight to the bathroom to get a second opinion.
YES+
I leaned on the wall of the stall, and started laughing. Then I photographed the stick, and sent it to my wife. It was true. In the face of what we suspected might be going wrong we had something happy to cling to after all.
Getting the news in a bathroom stall at Mt. Sinai ©Shutterbug |
I called my mom, who was waiting by the phone for news about Jody, and picked it up on the first ring. This made it clear just how worried she was, as picking up a call on the first ring was always a no-no in our house. My mom said she felt it "appeared too eager", and would make people think you didn't have a life. I could hear the smile in her voice when she reacted to my news, and we marveled at how the universe works sometimes. Jody arrived at the clinic just as I was ending the call, and we went to sit in the waiting room while a steady stream of nurses and doctors stopped to greet us. It was sadly lovely to be so well-known to all the staff by this point. I pulled the two positive pregnancy tests out of my bag to show Maddie, Rebecca, and Dr. Garbedian, who grabbed me and delivered a strong hug. She was confused why we had an appointment with Dr. Liu so early, however, and we watched the smile drain away from her face as she heard the reason. My stomach lurched.
Our heavy walk down the hall to Dr. Liu's office was surreal. She dealt with me first, asking how I was feeling and whether I had any symptoms this month. I mentioned I'd been cramping all week and had some slight spotting that made me assume the IVF hadn't worked, but then had the two positive tests. She looked grim, and told me that we would just have to wait and see what the blood work showed later in the day.
We turned to Jody, and Dr. Liu said she had the technician's report. She told us Jody's ovary contained a solid mass, not a cyst, and it was likely an LMP. This stands for low malignant potential tumour, which sounds promising in definition, however she went on to explain that this category of tumour could already be malignant. Pardon? And it could potentially have already spread. And she couldn't rule out the possibility that it was actually an invasive ovarian carcinoma, which took the life of a friend of mine a year and a half ago. She told us she was referring Jody to an oncologist at Princess Margaret Hospital, at which point I think Jody and I may have both gone slightly deaf. My best friend died there from colon cancer. Another friend died there of ovarian cancer. It is not a happy place.
As a preliminary diagnosis this was not the worst, but nor was it the best. Going forward it was going to mean more tests, more waiting, and too many options. Best-case scenario was Jody losing an ovary. Bad-case scenario was Jody losing all of her reproductive organs, and undergoing cancer treatment. Worst-case scenario was losing Jody.
Nurse Maddie saw us on our way out of the office, and hugged us. She pointed to the report in our hands, and said, "LMP - hang onto that." Jody and I held each other in the parking garage, trying to reassure one another but both of us scared and weeping. Too much sad history for both of us, and no idea how to tell Jody's mom what was going on. Now we both had to go to work. How to continue with our day after this? Another line drawn in our lives: that was before, and this will be after.
Jody drove away in her car, and I drove away in mine, feeling as though our responsibilities could not be postponed. I called my mom on my way to work, trying to relay the doctor's specific language in between my sobs. I heard my mother's voice break too, and I raged inside at the constant stream of bad news we were not only having to absorb ourselves, but were delivering to our loved ones. At my office, I stepped off the elevator in a fog, and there was my closest friend standing in front of me. She took one look at my face, and pulled me into the stairwell that we relied on for private conversations, the way Cagney and Lacey used the ladies room (betraying my age here). I fell apart epically, crying into her shoulder and saying, "I'm pregnant, and Jody has a tumour."
That afternoon, my blood test came back with a level of 26. Definitely pregnant, but well below the norm of around 50. My last pregnancy had clocked in at 90. We both Googled obsessively about both of our conditions the entire weekend, and I continued to have spotting. Jody said it could be late implantation, or it could be one embryo sticking while the other let go, or any number of things. The HPTs continued to reassure us YES+, and I tried to remain calm and control my stress, worried that my worrying would make my worries come true.
Monday morning I went for the all-important second blood test, and every minute of every hour of the rest of the day dragged by in slow motion. It was indescribably bizarre to await a phone call that would tell us whether this pregnancy was going to progress, or not. A higher number could mean the pregnancy was fine, and we'd be on our way to the next stage. A smaller number would mean it was just a matter of time. Sitting at my desk, I was trying to perform job functions that seemed laughably irrelevant, and trying to interact professionally with both clients and coworkers. At 4:30, the call came but the nurse said we'd have to wait one more day, because the lab had not processed all the results.
Tuesday morning, I was making breakfast in the kitchen when I heard Jody answer her phone in the bedroom. I stood at the sink with my hand frozen in mid-air, unable to move, heart pounding. This is it, this is it, this is it. I couldn't hear the conversation.
I turned when I heard Jody walk into the hallway, somehow knowing the answer when there was no joyful outburst. She shook her head, and began to cry. The answer was 6. One day later, it was definitely over. Again. Seven months ago today we suffered my first miscarriage, and one month ago today we suffered my second. Both Wednesdays. Both the 28th. Clearly not my lucky number.
We weren't sleeping much, but somehow life went on during the two-week wait for an appointment with the oncologist (what IS it with two-week waits?). As we arrived at the hospital entrance, it was impossible not to notice the massive sculpture of children out front, with the cancer clinic signage below....and the nurses in scrubs who were leaning against the wall right beside it, smoking. The disregard for their own lives and for the patients walking past them was infuriating.
Inside the waiting room it was busy, but very still. A gynecology oncology office meant all of the patients were women, though a few male family members were there. Most of the women had no hair. Bald heads and scarves were plentiful, and their situations were clear: this was no room for the faint of heart. Crooked posters taped to bland walls asked, "Did you get your My Cancer Journey binder?", and requests for study participants were scattered about. I could smell a mixture of hope, fear, and antiseptic, and it was suffocating.
Signage inside Princess Margaret Hospital © Shutterbug |
We were led to an exam room, where a resident took Jody's history in a thorough if somewhat nervous manner. Upon hearing about the premature deaths of her father an brother, his questioning took on a more serious tone, and he asked whether Jody had done any genetic testing. No. My seasick feeling returned.
About twenty minutes later, the star of the show literally swooped into the room, filling it with his big voice and big personality. Dr. Jason Dodge was not like any other doctor I'd ever met. In his 40s, bearded, and with a big smile, he settled into the chair next to me, leaned against my shoulder like an old friend, and asked Jody, "You don't mind if I cozy up to your wife, do you?" He asked us to explain to him what our understanding was of what we'd been told so far, and then said he would need to proceed with a physical exam of Jody. "Once you're back in your regular clothes, we can discuss my findings like equal human beings."
Dr. Dodge, the earlier resident, and a nurse were all present for Jody's exam. When I saw her in the stirrups, after my multitude of medical procedures, I said, "Is it wrong for me to take just a little pleasure in it being her turn to be the one on that damn table?" Dr. Dodge had a good laugh at that, and said teasingly, "You bitch!" He was relaxed and casual with us, trying to put us at ease, and not acting the way you would ever expect a cancer surgeon to act.
He told Jody to get dressed and promised he'd be back to have a discussion, but left the exam room with these parting words: "I don't think it's as bad as you've been led to believe." The door closed behind him, and Jody and I turned to face one another with shocked smiles, and the first faint glimmer of relief.
The exam room at Princess Margaret Hospital © Shutterbug |
The 45-minute wait for Dr. Dodge's return seemed much more bearable with his last words ringing in our ears. He strode back into the room, sat across from us, and fixed us with an intense gaze. He said he had "crunched his numbers" and came up with a 91% probability that Jody's tumour was not yet malignant. How specific! He said the removal of her ovary would be all that was indicated at this point, that it could likely be performed laparoscopically, and there was no reason our own doctor couldn't perform the surgery. The tumour would be biopsied, and we'd have to wait once again for final confirmation of its status, but this was as optimistic an outlook as we could have hoped. When asked whether timing was an important factor, and whether we should postpone our planned vacation, he vehemently assured us it was not. "Go!" he shouted. "Have fun!"
Nearly two hours after arriving, Jody and I made our way back through the packed waiting room, my knees now just as weak with relief as they were with fear. We felt guilty passing all of the other patients there without picking up a "My Cancer Journey" binder, or even stopping to make a follow-up appointment. How many others there would be as lucky?
Outside, we hugged on the front steps, not caring who was watching. There is still a surgery ahead for Jody, which is no small thing, and a biopsy result to wait for, but we have every reason to be hopeful. If love were enough to keep my wife well, she would outlive all of us.
I am so proud of her strength, her character, and her ability to care for others even in the face of her own deepest fears. I don't know how I got so fortunate. I don't take what we've been given for granted; I cherish every day that I get to spend with my best friend. There is just so much time to make up for, so much sadness to erase for both of us....we need more time. Much more time.